Fatigue-iversary

mebaking I had a nasty thought the other day that my entire year as a 27-year-old was just spent being sick. Wow, that’s a great way to make yourself miserable Susan, so let’s rearrange that thought little miss overachiever. Ok, yes I was sick with CFS for my 28th year on this earth, but more importantly some very good things happened too.
Read on

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Grieving for the past two years

openerWhy have I been so sad? Why do I cry watching clichéd American TV shows? Where has my motivation gone? What’s going on? Am I depressed again? Or maybe it’s something else… Something else? Maybe it’s July. And why is July significant? Well, it just so happens that in the month of July, two exhausting years ago, I got sick, and I didn’t get better. Read on

Hey There Kiddo, It’s OK

mehoodieRecovering from CFS isn’t a matter of snapping your fingers and waking up all better; it’s a slow  journey with many twists and turns. Given this, I need to cut myself some slack and realise that I’m looking after myself the best way I can. I almost need my own personal cheerleader telling me “awesome, right on, like totally freak me out!” Read on

Alarm Bells Ringing

crashMayday Mayday Mayday! I am without power, crash approaching, arm your battle stations, this is not a drill. Oh dear, I’ve done too much, I knew I was pushing it but I was having so much fun so I decided to push through. Pushing through worked for me for 26 years, maybe it would again? Err, no. Read on

CFS Awareness Day

batteryIt’s CFS Awareness Day today people! I’m wearing blue (the CFS colour) and heading to the CFS Health Centre this evening to gather with other chronically fatigued warriors and find some solidarity. It won’t be a late night, we’re bringing blankets and pillows and it will be delightfully low-key. I’ll also be surrounded by people who 100 percent understand my illness. Yes! Read on