I recently found myself in a CFS setback, back to being housebound and some days bedbound. On the other side of this setback though, having returned to my baseline, I can now see that it was a good thing, that those six weeks of fatigue and confusion and pain and grossness were actually worth it. Why? Because I realised my health is actually improving! Read on
Tag Archives: ME
Fatigue-iversary
I had a nasty thought the other day that my entire year as a 27-year-old was just spent being sick. Wow, that’s a great way to make yourself miserable Susan, so let’s rearrange that thought little miss overachiever. Ok, yes I was sick with CFS for my 28th year on this earth, but more importantly some very good things happened too.
Read on
Alarm Bells Ringing
Mayday Mayday Mayday! I am without power, crash approaching, arm your battle stations, this is not a drill. Oh dear, I’ve done too much, I knew I was pushing it but I was having so much fun so I decided to push through. Pushing through worked for me for 26 years, maybe it would again? Err, no. Read on
CFS Awareness Day
It’s CFS Awareness Day today people! I’m wearing blue (the CFS colour) and heading to the CFS Health Centre this evening to gather with other chronically fatigued warriors and find some solidarity. It won’t be a late night, we’re bringing blankets and pillows and it will be delightfully low-key. I’ll also be surrounded by people who 100 percent understand my illness. Yes! Read on
a snoozie life 