Climbing back up the cliff

beddogsI recently found myself in a CFS setback, back to being housebound and some days bedbound. On the other side of this setback though, having returned to my baseline, I can now see that it was a good thing, that those six weeks of fatigue and confusion and pain and grossness were actually worth it. Why? Because I realised my health is actually improving! Read on

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Fatigue-iversary

mebaking I had a nasty thought the other day that my entire year as a 27-year-old was just spent being sick. Wow, that’s a great way to make yourself miserable Susan, so let’s rearrange that thought little miss overachiever. Ok, yes I was sick with CFS for my 28th year on this earth, but more importantly some very good things happened too.
Read on

Grieving for the past two years

openerWhy have I been so sad? Why do I cry watching clichéd American TV shows? Where has my motivation gone? What’s going on? Am I depressed again? Or maybe it’s something else… Something else? Maybe it’s July. And why is July significant? Well, it just so happens that in the month of July, two exhausting years ago, I got sick, and I didn’t get better. Read on

Hey There Kiddo, It’s OK

mehoodieRecovering from CFS isn’t a matter of snapping your fingers and waking up all better; it’s a slow  journey with many twists and turns. Given this, I need to cut myself some slack and realise that I’m looking after myself the best way I can. I almost need my own personal cheerleader telling me “awesome, right on, like totally freak me out!” Read on

Alarm Bells Ringing

crashMayday Mayday Mayday! I am without power, crash approaching, arm your battle stations, this is not a drill. Oh dear, I’ve done too much, I knew I was pushing it but I was having so much fun so I decided to push through. Pushing through worked for me for 26 years, maybe it would again? Err, no. Read on

CFS Awareness Day

batteryIt’s CFS Awareness Day today people! I’m wearing blue (the CFS colour) and heading to the CFS Health Centre this evening to gather with other chronically fatigued warriors and find some solidarity. It won’t be a late night, we’re bringing blankets and pillows and it will be delightfully low-key. I’ll also be surrounded by people who 100 percent understand my illness. Yes! Read on

Busy Being Not So Busy

mebridgeMany people have told me that having chronic fatigue really teaches you a lot about yourself and how you view the world. For me, I think the biggest lesson I’ve learnt is stopping the glorification of busy in my life; getting off the treadmill and taking time to notice how I’m feeling. Read on

I accidentally went surfing…

me blue dress smileYep, that’s right, I, Snooze Mackenzie, CFS warrior and worrier, accidentally went surfing on Monday! What, did I trip and somehow find myself on a floating board in the ocean? Well, no, it was a decision I made, one that was fun, but one that freaked me out as well and has had me on the foam roller twice a day since! Read on