The big news is that I went skiing last month. Yep, that’s right, me, the CFS warrior went skiing. Woo hoo! And why haven’t I shouted this from the rooftops and stamped it all over social media? Why haven’t I yelled loudly and proudly about achieving this goal I set two years ago? Well, I wasn’t sure how to explain that I did something as insanely energetic as skiing, yet I still have chronic fatigue… Read on
Tag Archives: brain fatigue
Body Rebalancing
I’ve been doing well lately, really well, but I haven’t blogged about it until now as I have not trusted it at all. I’ve been waiting for my body to knock itself over and cackle at me with a maniacal grin, “just tricking, you can’t do all this”. But maybe I can? Continue reading
Using words for awareness
Hello readers, well it’s here again, CFS/ME Awareness Day and I’m absolutely stoked (and struggling to type properly because of my shaking hands) to share that I wrote an awareness raising article for the website Mamamia. Read on
Progress not Perfection
As a lifelong overachiever one of the hardest things I find with recovery from CFS is acknowledging the slow progress I’m making. I don’t want to improve at turtle-pace I want to wake up recovered. I want to progress in leaps and bounds and achieve things like I used to, glacial pace doesn’t please me at all. The thing is though, with this illness, that’s not how recovery works. Read on
Much better bad days
I want to tell you about my bad days. Why? Because the bad days I have now, would have been considered good days a year ago! My bad days have improved to the point that, early last year I would have been happy to spend a day at that level, I would have considered it a pretty great day in fact! Read on
Noticing The Little Things
I got caught in the rain on Sunday doing my daily walk and instead of cringing or shrieking or running to my car I just grinned, exulted to be out in the elements and feeling alive. I strode on down the path and put my face up to the falling water and felt happy and hopeful. Read on
Climbing back up the cliff
I recently found myself in a CFS setback, back to being housebound and some days bedbound. On the other side of this setback though, having returned to my baseline, I can now see that it was a good thing, that those six weeks of fatigue and confusion and pain and grossness were actually worth it. Why? Because I realised my health is actually improving! Read on
Fatigue-iversary
I had a nasty thought the other day that my entire year as a 27-year-old was just spent being sick. Wow, that’s a great way to make yourself miserable Susan, so let’s rearrange that thought little miss overachiever. Ok, yes I was sick with CFS for my 28th year on this earth, but more importantly some very good things happened too.
Read on
Alarm Bells Ringing
Mayday Mayday Mayday! I am without power, crash approaching, arm your battle stations, this is not a drill. Oh dear, I’ve done too much, I knew I was pushing it but I was having so much fun so I decided to push through. Pushing through worked for me for 26 years, maybe it would again? Err, no. Read on
CFS Awareness Day
It’s CFS Awareness Day today people! I’m wearing blue (the CFS colour) and heading to the CFS Health Centre this evening to gather with other chronically fatigued warriors and find some solidarity. It won’t be a late night, we’re bringing blankets and pillows and it will be delightfully low-key. I’ll also be surrounded by people who 100 percent understand my illness. Yes! Read on
a snoozie life 