There’s been a shift in my fatigued state over the last month in that the bad days are definitely better. By this I mean that they are getting less frequent and less severe, but they are also getting harder to deal with. Read on
Tag Archives: CFS
Christmas with Chronic Fatigue
Well, it’s been and gone, the awesomeness that is Christmas. I’m a Christmas nut, I walk around tunelessly singing, bake constantly, plan my gift giving meticulously and spend hours gazing at our decorated Christmas tree, sniffing deeply to get that Christmasy smell. Read on
I slept properly last night!
I’m writing this after the first good night’s sleep I’ve had in a week and I feel like a completely different person. Woo hoo, sleep is the bomb. You’d think I get a lot of sleep, being chronically fatigued and all, but that’s one of the weirder parts of CFS in that you’re exhausted but find it hard to sleep. Read on
Make my health my priority
What’s that? My health is more important than the obligation to attend a family event that I don’t want to go to anyway? Yes! What’s that, my health is more important than a coffee date I’d like to go on but will inevitably crash on the other side of? Well yes, but I’d rather go have coffee and not crash, can’t I do that? Not always. Read on
Baby Crash
Last week I expended a huge amount of energy and subsequently crashed on the other side. And why did I do this? Why after such steely resolve not to keep pushing and crashing did I push and then crash? Well, for the most excellent reason that I became an Auntie. Read on
“Please notice when you are happy”
I’ve come across this Kurt Vonnegut quote twice in one week and in light of some crappy fatigue-related things I thought I’d better write about it. The full quote is “I urge you to please notice when you are happy, and exclaim or murmur or think at some point, ‘If this isn’t nice, I don’t know what is.’” Read on
A different type of Cup Day
When I decided that I would be a sensible girl and not go to Melbourne Cup Day I was very sad. I knew it would be stupid to go so I wisely said no (amid a slight tantrum) but decided I’d better do something fun instead, or I’d be sitting at home all day feeling grumpy and wearing a fascinator with my pyjamas… Read on
Mental (adjustments)
I’ve been having an interesting time inside my head these last 15 months trying to wrangle all the scary thoughts about fatigue and adjust to this much-altered lifestyle. The hardest thing I’ve had to do is accept that I can’t do everything my “old self” or “healthy self” could do, and that sucks. Read on
Just let me go for a run!
I found a photo in my room today of me at the Inter-school APS Athletics Finals in Melbourne in 2005 running in the 4x100m relay. My arm is outstretched for the baton, I’ve got my serious Suze focussed face on and I’m about to sprint to the finish line. So, that was 2005… Now? My legs are sore from wearing high heels yesterday, so yeah, a bit of a difference. Read on
Interstate Fatigue
This last week I travelled to a farm in northern NSW to visit my relations up there whom I rarely see. A trip? Interstate? Four flights? A week? Was I mad? I asked myself these questions in a frenzied state the week before we left but it turns out this was the ideal holiday for a snoozie susie… Why? Read on
a snoozie life 