I used to have chronic fatigue

“I used to have chronic fatigue”. I said that the other day, it rolled off the tongue easily and I continued on with my sentence. Easy as can be, I used to have chronic fatigue… wow, how good that sounds. But do I believe it? Continue reading

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exiting the comfort zone

openerA few years ago a friend of mine was heading off on exchange to Denmark for university when she said to me with a smile (and a fair amount of trepidation), “what is wrong with our comfort zones again? Why can’t we stay in them?”. She went on to have a great experience on exchange but I’ve always remembered that moment, it resonated.  Continue reading

skiing? goal achieved!

onskisThe big news is that I went skiing last month. Yep, that’s right, me, the CFS warrior went skiing. Woo hoo! And why haven’t I shouted this from the rooftops and stamped it all over social media? Why haven’t I yelled loudly and proudly about achieving this goal I set two years ago? Well, I wasn’t sure how to explain that I did something as insanely energetic as skiing, yet I still have chronic fatigue… Read on

Progress not Perfection

openerAs a lifelong overachiever one of the hardest things I find with recovery from CFS is acknowledging the slow progress I’m making. I don’t want to improve at turtle-pace I want to wake up recovered. I want to progress in leaps and bounds and achieve things like I used to, glacial pace doesn’t please me at all. The thing is though, with this illness, that’s not how recovery works. Read on

Climbing back up the cliff

beddogsI recently found myself in a CFS setback, back to being housebound and some days bedbound. On the other side of this setback though, having returned to my baseline, I can now see that it was a good thing, that those six weeks of fatigue and confusion and pain and grossness were actually worth it. Why? Because I realised my health is actually improving! Read on

Fatigue-iversary

mebaking I had a nasty thought the other day that my entire year as a 27-year-old was just spent being sick. Wow, that’s a great way to make yourself miserable Susan, so let’s rearrange that thought little miss overachiever. Ok, yes I was sick with CFS for my 28th year on this earth, but more importantly some very good things happened too.
Read on