Hey There Kiddo, It’s OK

mehoodieRecovering from CFS isn’t a matter of snapping your fingers and waking up all better; it’s a slow  journey with many twists and turns. Given this, I need to cut myself some slack and realise that I’m looking after myself the best way I can. I almost need my own personal cheerleader telling me “awesome, right on, like totally freak me out!” Read on

Alarm Bells Ringing

crashMayday Mayday Mayday! I am without power, crash approaching, arm your battle stations, this is not a drill. Oh dear, I’ve done too much, I knew I was pushing it but I was having so much fun so I decided to push through. Pushing through worked for me for 26 years, maybe it would again? Err, no. Read on

CFS Awareness Day

batteryIt’s CFS Awareness Day today people! I’m wearing blue (the CFS colour) and heading to the CFS Health Centre this evening to gather with other chronically fatigued warriors and find some solidarity. It won’t be a late night, we’re bringing blankets and pillows and it will be delightfully low-key. I’ll also be surrounded by people who 100 percent understand my illness. Yes! Read on

I slept properly last night!

jumpI’m writing this after the first good night’s sleep I’ve had in a week and I feel like a completely different person. Woo hoo, sleep is the bomb. You’d think I get a lot of sleep, being chronically fatigued and all, but that’s one of the weirder parts of CFS in that you’re exhausted but find it hard to sleep.  Read on

Make my health my priority

mybyfireWhat’s that? My health is more important than the obligation to attend a family event that I don’t want to go to anyway? Yes! What’s that, my health is more important than a coffee date I’d like to go on but will inevitably crash on the other side of? Well yes, but I’d rather go have coffee and not crash, can’t I do that? Not always. Read on

Baby Crash

opener

Last week I expended a huge amount of energy and subsequently crashed on the other side. And why did I do this? Why after such steely resolve not to keep pushing and crashing did I push and then crash? Well, for the most excellent reason that I became an Auntie. Read on

Mental (adjustments)

crazymeI’ve been having an interesting time inside my head these last 15 months trying to wrangle all the scary thoughts about fatigue and adjust to this much-altered lifestyle. The hardest thing I’ve had to do is accept that I can’t do everything my “old self” or “healthy self” could do, and that sucks. Read on