It’s CFS Awareness Day today people! I’m wearing blue (the CFS colour) and heading to the CFS Health Centre this evening to gather with other chronically fatigued warriors and find some solidarity. It won’t be a late night, we’re bringing blankets and pillows and it will be delightfully low-key. I’ll also be surrounded by people who 100 percent understand my illness. Yes! Read on
Tag Archives: post-viral fatigue
I can’t “do it mine own self” with CFS
This is me as a kid, an independent stubborn little tyke known to utter things like, “I do it mine own self” when confronted with something challenging and not wanting help from my parents. Not much has changed since then, I still want to do everything myself (group projects were an anathema to me!) Read on
Busy Being Not So Busy
Many people have told me that having chronic fatigue really teaches you a lot about yourself and how you view the world. For me, I think the biggest lesson I’ve learnt is stopping the glorification of busy in my life; getting off the treadmill and taking time to notice how I’m feeling. Read on
I accidentally went surfing…
Yep, that’s right, I, Snooze Mackenzie, CFS warrior and worrier, accidentally went surfing on Monday! What, did I trip and somehow find myself on a floating board in the ocean? Well, no, it was a decision I made, one that was fun, but one that freaked me out as well and has had me on the foam roller twice a day since! Read on
Less crappy bad days
There’s been a shift in my fatigued state over the last month in that the bad days are definitely better. By this I mean that they are getting less frequent and less severe, but they are also getting harder to deal with. Read on
Christmas with Chronic Fatigue
Well, it’s been and gone, the awesomeness that is Christmas. I’m a Christmas nut, I walk around tunelessly singing, bake constantly, plan my gift giving meticulously and spend hours gazing at our decorated Christmas tree, sniffing deeply to get that Christmasy smell. Read on
I slept properly last night!
I’m writing this after the first good night’s sleep I’ve had in a week and I feel like a completely different person. Woo hoo, sleep is the bomb. You’d think I get a lot of sleep, being chronically fatigued and all, but that’s one of the weirder parts of CFS in that you’re exhausted but find it hard to sleep. Read on
Make my health my priority
What’s that? My health is more important than the obligation to attend a family event that I don’t want to go to anyway? Yes! What’s that, my health is more important than a coffee date I’d like to go on but will inevitably crash on the other side of? Well yes, but I’d rather go have coffee and not crash, can’t I do that? Not always. Read on
Baby Crash
Last week I expended a huge amount of energy and subsequently crashed on the other side. And why did I do this? Why after such steely resolve not to keep pushing and crashing did I push and then crash? Well, for the most excellent reason that I became an Auntie. Read on
“Please notice when you are happy”
I’ve come across this Kurt Vonnegut quote twice in one week and in light of some crappy fatigue-related things I thought I’d better write about it. The full quote is “I urge you to please notice when you are happy, and exclaim or murmur or think at some point, ‘If this isn’t nice, I don’t know what is.’” Read on
a snoozie life 