almost better…

mejeanbirthday

I made it to midnight this New Year’s Eve, the first time in three years, and as I raised my glass to cheers with tipsy friends I felt so grateful to be there, to be functioning, to be happy and to be almost recovered… Read on

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skiing? goal achieved!

onskisThe big news is that I went skiing last month. Yep, that’s right, me, the CFS warrior went skiing. Woo hoo! And why haven’t I shouted this from the rooftops and stamped it all over social media? Why haven’t I yelled loudly and proudly about achieving this goal I set two years ago? Well, I wasn’t sure how to explain that I did something as insanely energetic as skiing, yet I still have chronic fatigue… Read on

Progress not Perfection

openerAs a lifelong overachiever one of the hardest things I find with recovery from CFS is acknowledging the slow progress I’m making. I don’t want to improve at turtle-pace I want to wake up recovered. I want to progress in leaps and bounds and achieve things like I used to, glacial pace doesn’t please me at all. The thing is though, with this illness, that’s not how recovery works. Read on

Fatigue-iversary

mebaking I had a nasty thought the other day that my entire year as a 27-year-old was just spent being sick. Wow, that’s a great way to make yourself miserable Susan, so let’s rearrange that thought little miss overachiever. Ok, yes I was sick with CFS for my 28th year on this earth, but more importantly some very good things happened too.
Read on

Hey There Kiddo, It’s OK

mehoodieRecovering from CFS isn’t a matter of snapping your fingers and waking up all better; it’s a slow  journey with many twists and turns. Given this, I need to cut myself some slack and realise that I’m looking after myself the best way I can. I almost need my own personal cheerleader telling me “awesome, right on, like totally freak me out!” Read on

Alarm Bells Ringing

crashMayday Mayday Mayday! I am without power, crash approaching, arm your battle stations, this is not a drill. Oh dear, I’ve done too much, I knew I was pushing it but I was having so much fun so I decided to push through. Pushing through worked for me for 26 years, maybe it would again? Err, no. Read on

CFS Awareness Day

batteryIt’s CFS Awareness Day today people! I’m wearing blue (the CFS colour) and heading to the CFS Health Centre this evening to gather with other chronically fatigued warriors and find some solidarity. It won’t be a late night, we’re bringing blankets and pillows and it will be delightfully low-key. I’ll also be surrounded by people who 100 percent understand my illness. Yes! Read on

I accidentally went surfing…

me blue dress smileYep, that’s right, I, Snooze Mackenzie, CFS warrior and worrier, accidentally went surfing on Monday! What, did I trip and somehow find myself on a floating board in the ocean? Well, no, it was a decision I made, one that was fun, but one that freaked me out as well and has had me on the foam roller twice a day since! Read on