I made it to midnight this New Year’s Eve, the first time in three years, and as I raised my glass to cheers with tipsy friends I felt so grateful to be there, to be functioning, to be happy and to be almost recovered… Read on
Tag Archives: illness
skiing? goal achieved!
The big news is that I went skiing last month. Yep, that’s right, me, the CFS warrior went skiing. Woo hoo! And why haven’t I shouted this from the rooftops and stamped it all over social media? Why haven’t I yelled loudly and proudly about achieving this goal I set two years ago? Well, I wasn’t sure how to explain that I did something as insanely energetic as skiing, yet I still have chronic fatigue… Read on
Body Rebalancing
I’ve been doing well lately, really well, but I haven’t blogged about it until now as I have not trusted it at all. I’ve been waiting for my body to knock itself over and cackle at me with a maniacal grin, “just tricking, you can’t do all this”. But maybe I can? Continue reading
Using words for awareness
Hello readers, well it’s here again, CFS/ME Awareness Day and I’m absolutely stoked (and struggling to type properly because of my shaking hands) to share that I wrote an awareness raising article for the website Mamamia. Read on
Progress not Perfection
As a lifelong overachiever one of the hardest things I find with recovery from CFS is acknowledging the slow progress I’m making. I don’t want to improve at turtle-pace I want to wake up recovered. I want to progress in leaps and bounds and achieve things like I used to, glacial pace doesn’t please me at all. The thing is though, with this illness, that’s not how recovery works. Read on
Getting comfortable with the uncomfortable
I watched a video the other day that talked about getting comfortable with the uncomfortable in life. This can relate to so many areas from dating to sport to going to the doctor but it resonated with me and my recovery from chronic fatigue syndrome. Read on
Much better bad days
I want to tell you about my bad days. Why? Because the bad days I have now, would have been considered good days a year ago! My bad days have improved to the point that, early last year I would have been happy to spend a day at that level, I would have considered it a pretty great day in fact! Read on
Fatigue-iversary
I had a nasty thought the other day that my entire year as a 27-year-old was just spent being sick. Wow, that’s a great way to make yourself miserable Susan, so let’s rearrange that thought little miss overachiever. Ok, yes I was sick with CFS for my 28th year on this earth, but more importantly some very good things happened too.
Read on
a snoozie life 