exiting the comfort zone

openerA few years ago a friend of mine was heading off on exchange to Denmark for university when she said to me with a smile (and a fair amount of trepidation), “what is wrong with our comfort zones again? Why can’t we stay in them?”. She went on to have a great experience on exchange but I’ve always remembered that moment, it resonated.  Continue reading

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almost better…

mejeanbirthday

I made it to midnight this New Year’s Eve, the first time in three years, and as I raised my glass to cheers with tipsy friends I felt so grateful to be there, to be functioning, to be happy and to be almost recovered… Read on

skiing? goal achieved!

onskisThe big news is that I went skiing last month. Yep, that’s right, me, the CFS warrior went skiing. Woo hoo! And why haven’t I shouted this from the rooftops and stamped it all over social media? Why haven’t I yelled loudly and proudly about achieving this goal I set two years ago? Well, I wasn’t sure how to explain that I did something as insanely energetic as skiing, yet I still have chronic fatigue… Read on

Much better bad days

hittingcricketballmeI want to tell you about my bad days. Why? Because the bad days I have now, would have been considered good days a year ago! My bad days have improved to the point that, early last year I would have been happy to spend a day at that level, I would have considered it a pretty great day in fact! Read on

Climbing back up the cliff

beddogsI recently found myself in a CFS setback, back to being housebound and some days bedbound. On the other side of this setback though, having returned to my baseline, I can now see that it was a good thing, that those six weeks of fatigue and confusion and pain and grossness were actually worth it. Why? Because I realised my health is actually improving! Read on

Fatigue-iversary

mebaking I had a nasty thought the other day that my entire year as a 27-year-old was just spent being sick. Wow, that’s a great way to make yourself miserable Susan, so let’s rearrange that thought little miss overachiever. Ok, yes I was sick with CFS for my 28th year on this earth, but more importantly some very good things happened too.
Read on